Sweet Remi cannot get a break,  He has now come down with Spinal Meningitis.  We did a spinal tap to confirm the diagnosis.  The fluid sample was sent off for diagnosis and should be back this week.  Remi was finally feeling better when he suddenly took a turn for the worse.  His fever shot up, and he could not move his neck without terrible pain.   Remi has immune-mediated Meningitis that we are going to have to treat with steroids.   Every precaution is being taken to protect his GI system and to prevent any further bleeding issues.  The best news is that he was already in ICU, and his Specialists were on top of it immediately.  

Our sweet boy cannot catch a break.   Everything he has been experiencing is his body's immune system reacting negatively to all of the steroids and drugs he was given weeks earlier.  The good news is that the swelling on his feet and face have gone down.  Even when Remi gets through this next obstacle, he will still be in danger of organ failure.   We are doing everything to prevent this, but kidney failure is something we are very worried about.   

Remi has the will to live, or he would have been dead a long time ago.  We are not giving him drugs to prolong the inevitable.  We are treating medical conditions.   Remi is fighting as hard as he can to get through this.  We are not going to stop treating him because his bills are through the roof.  If he needs something, he gets it.   He is fighting to be here, and we are doing everything we can to supply him with the best medical care possible.  He is alive today because he is a fighter, and he has an amazing team of Critical Care Specialists overseeing his care.   We are not going to turn our back on him and watch him suffer if there is something that can be done.   We are not playing God.  We are treating medical issues that have created havoc with his immune system.  Remi might still die after all of this. We will at least know we did everything medically and humanly possible to save him.   At the end of the day, that is all that matters.   We want him to have a good quality of Life and to know Love.